Data Archiving & Sharing
Supporting transparency in neonatal research.
Research Data Policy
IJNE supports open science while recognizing neonatal research involves vulnerable patient populations requiring special data protection considerations.
Clinical Data
De-identified datasets should be shared where ethically permissible. Aggregate data acceptable for patient protection.
Protocols
Detailed study protocols should be provided as supplementary materials enabling replication.
Code Sharing
Analysis code should be deposited in GitHub or similar repositories with documentation.
Neonatal Data Sensitivity: We recognize that neonatal data requires heightened privacy protections. De-identification, parental consent considerations, and institutional requirements must be addressed.
- Remove personally identifiable information including dates and locations
- Document parental consent for data sharing
- Follow institutional data governance requirements
- Consider genomic data repositories for genetic studies
Include data availability statements in all manuscripts. Contact editors for guidance on sensitive neonatal data handling.
